​​​7 truths of caring

​​​7 truths of caring 
​When you care for a child with special needs - some truths are consistent & the same across the realm

1 it's hard.
No matter which way you look at it- it's hard. You have dreams & expectations & it just doesn't pan out that easy

2 It is a huge responsibility 
There are times I've had to make life & death decisions. There are other times I wonder if I am letting someone care for my gorgeous daughter is fit to do it. Other times - it's still me who has to make decisions- even if remotely 

3 It is lonely 
No matter how many others are around you- it still a lonely journey no amount of support groups or caring others are around you- it's still lonely 

4 No amount of "I'm sorry for you" is gonna make it better 
It's just not ok. I don't want people to feel sorry for me. I want support & understanding- not your pity or sorrow - that's not gonna do it

5 Not everyone can make the journey
The percentage of single parents is high. Some just don't make the cut & follow a path of their own leaving others with the burden

6 It's not a path I would choose
But while I'm here - I might as well love the people I meet along the way. I've met fantastic families doing fantastic things. I would not have met if not for this journey. I wouldn't choose this journey but I don't want to give up the fabulousness of the friends I have made & those who have supported me- is

7 Your friends with regular kids just won't get it
Yep! It's the truth. No matter how many times or how much you share - I don't know any friends who don't share my journey who "get it"..... the work behind the scenes that goes into just walking out the door every day.... its enormous! I would never wish it on them but hell- I wish they'd be a bit more understanding along the way